Suffering and so on, a clarification.

Just a note: 
i don’t “suffer with” ankylosing spondylitis(+) any more than i am “wheelchair bound” or “high maintenance”, or any number of other embarrassing able-bodied imaginings / conceptions of living with this particular kind of disabled body. But it does cause me pain and fatigue, yes that’s part of it; and the ableism that surrounds it causes financial hardship, community and broader societal othering and isolation and danger, and generalized architectural anomie, yes. It ain’t a fucking picnic. i work on it not being a source of shame for me, i’d like you to work on it not being a source of pity for you. The biggest thing that gets in my way on a daily basis is so often able bodied folks who instead of striking up community with me imagine you got it all figured out already. 

i don’t need your pity or your able bodied guilt; i need your solidarity.

[sidebar: i also don’t “suffer from” the lack of organization, the loss of memory, the short attention, the social anxiety etc which comes from my head injuries and ADHD; i live with it, it gives me amazing things you might find surprising, and yes it also is really frustrating. i work on it not being a source of shame for me, and i’d like you to work on it not being a source of pity for you].

Thanks for listening.

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