Thinking about this article:
“Inattention to Accessibility:
Am I Part of the Disability Community, Too?”
i loved the line “Having a conference outside of the entrance to Universal Studios is rather like saying, “We’re having our conference across the street from the gates of hell. All are welcome!”
i really appreciated how this writer shared where she’s at, the hurt about both accessing disability community and accessibility. i’m outraged by the lack of willingness/ openness to dealing with this stuff too, and am not alone in that. Yes, as far as i’m concerned, these kinds of disabilities are as important as any other. And i also really feel this part: “using up all my spoons just to get in the door is not how I see accessibility working.“
i do think this article skips over (and perhaps does so intentionally) the reality that many folks on wheels and with other “visible” disabilities also are not neurotypical, such as myself. That many neuroAtypical folks have “visible” disabilities. This aspect of the article felt really all-or-nothing to me, setting up a strict binary, when i think that just isn’t the way this shit works most of the time.
i recognize that that opinion is informed by the fact that i have a lot of feelings around conversations where one presentation of a disability is pitted against another (usually “visible” and “invisible” disabilities), and we are encouraged to fight one another for the scraps.
i also really do want folks to stop making analogies to a situation they do not live. i wouldn’t say that my experience on wheels is just like her experience of sensory stuff, because it is not, even though i share some of those experiences.
And the thing is, they don’t *have* to be analogous to be understood, to be respected, and to be actively worked on improving and changing and uprooting altogether. It is scary as fuck -and can be dangerous- to put this kind of thing out there, and i’m glad that there are folks who are doing this, even if i don’t agree with it all, even if i have all kinds of feels about it.